Friday, July 15th - Day 26 Final update

I am typing tonights update within the hospital as it is my turn for a sleep over with Tori. Tori is currently in one of the few rooms with a couch to sleep on so it is not that bad.

Tori flat out struggled to go to sleep today as my early morning update and afternoon update indicated. At about 4:00pm or so we started to see some symptoms why. Tori would wince with discomfort and pain about every 5-10 minutes and we couldn't figure it out. She would tighten her arms and hands and bring them to her chest each time while her face grimaced in pain. Between 6:00pm and 9:00pm the intervals were more like 1-3 minutes and we finally began to notice the stiffening and shaking in her feet and legs. She was just hurting real bad during the episodes and we believe it is Myoclonus related again. The Keppra is surely out of her system at this point so the doctors gave her some Clonidine and a Clonidine patch as well. She also recieved some sleep inducers because she has been awake for over 40 hours an is totally exhausted. She finally went to sleep at 10:00pm tonight. I will be sleeping beside her tonight and will be monitoring her closely.

There were plenty of good things today as I noted in the earlier updates. Tori did go a full 10 hours off the respirator and did awesome!!

Outside of that, Maria and I visited the Health South Hospital in Sandy again and have initiated Tori's move to that facility. It is our best interum option at this point. It will probably take place Monday or Tuesday of next week depending on whether Tori is completely stable or not.

Alright, back to the room for me and I'll be providing updates as I can during the weekend.

Thank you all and good night.

-Tim