Friday, July 15th - Day 26 (afternoon update)

Tori is refusing to go to sleep today... She was awake for most of night as I mentioned in my early morning update. She is yawning quite a bit and will close her eyes only for a minute or two. Hopefully she has zonked while I'm typing this update... We have also NOT seen any more heart rate drops since this mornings and we are hopeful that the removal of the Beta Blockers will resolve this issue.

Tori had Meagan, Missy, Caitlyn and Alexia from the dance team visit her today and she was very excited!! She had BIG grins and smiles throughout the visit and she was actually turning her whole head consistently from side to side to see the girls on both sides of the bed. They also brought her a NYC T-shirt which had written messages from all of the dance team on it. Maria and I read them all and we love those girls soooo much!!

Tori was also placed in a special, practice wheel chair to prepare her for the custom one which is being built. She spent about ten minutes in it and did pretty well. Again, we cannot wait to wheel her out of that room for a while!!

Another action we have seen from Tori today is her moving her entire hand and arm up to her throat then all the way down until her hand is by her side. She has done this in both directions and it demonstrates that she at least has her full range of motion.

Ok, thats it for now - time to go back and see if she is sleeping or not.

Thanks!!

-Tim

Big Smiles!!!

I was able to visit Tori this afternoon for a couple of hours. It was so great to see her Big Smiles. She kept smiling at me it was so wonderful to see. She did not want to sleep, she was fighting going to sleep. She kept yawning but I don't think she wants to miss out on anything. It is so great to be able to go visit Tori, Tim & Maria at the hospital. Tori definetly know when her mom and dad are in the room she seem more calm when they are there. It is great to see her progress. Thanks for the Smiles Tori you made my day.

Melanie