Thursday through Sunday - March 1st through 4th
Tori has done well over the past few days and is remaining healthy. She also seems to be sleeping little more than usual but that is a good thing since she tends to become less agitated while she is awake.
Her home PT and ST therapies are continuing with Shawn and Meredyth coming over twice per week. We provide the PT on any other day of course. We are still trying to feed Tori each and everyday through her mouth and she can consistently eat almost an entire applesauce. She likes applesauce better than yogurt and we think it is because there is more texture to it. Tori's high school assistants made it over last Friday and worked with her a bit as well. They are also going to try and come over two or three times per week.
Tori's baclofen pump increase at the PCMC went fine and she is now scheduled for botox and phenol injections towards the end of the month. We also made an appointment with a orthopedic surgeon while we were there and have an appointment in early April to review Tori's tendon release surgery on her left ankle. We may look for another surgeon closer to home for the operation as well.
We took Tori for a drive today and also went shopping at Costco. When I asked her if she wanted to go out and that she needed to use her voice to tell me she was pretty quick to respond with an "aaahhhhh". So off we went!! Tori had a good time and enjoyed a few of the Costco samples as she normally does. She was also very relaxed this afternoon and evening and spent most of the time with us all in the family room. She really loves the beautiful and comfortable new quilt that Lauren's family made for her!! Thank you!! :-)
Another new week is upon us and we're hoping it will be a quiet and progressive one for Tori. I will also be heading to Disneyland with Brendan later this week for a little 'getaway' just for him. He deserves it as he seems to get shortchanged somewhat with our constant care needs for Tori and Whitney's various travel escapades to dance competitions. We are both looking forward to the trip!! :-)
Thank you all as always and your support and prayers mean the world to us,