Tori and Maria resting
Submitted by Tim Schmanski on Tue, 2007-01-16 03:24. China Trip
Tori and Maria catching some sleep on the 7 hour Air France Leg 2 from Wahington DC Dulles to Paris Charles Degaulle airport.
Tori says "Let's do this!!!"
Submitted by Tim Schmanski on Tue, 2007-01-16 03:05. China Tripfollowing Tori
Submitted by charlene parker on Mon, 2007-01-15 23:23.I have only recently become aware of Tori and her new adventure. I have a 33 yr old son with an anoxic brain injury as of 8/27/04. He sounds much like Tori, except he cannot see. Jeffrey has cortical visual impairment. I , too, am anxious for the treatments to go well for Tori. What a brave family you all are. How exciting that you were able to put this all together and get Tori to China. Doing a month of HBOT was a big step for us. I pray that things continue to go well for Tori and all of you, and that you will get your Tori back. We pray for ya'll daily. God is good .... all the time. In His love,
Charlene Parker
Jeffrey's mom
Lorena, TX
Sunday and Monday, January 14th and 15th - Day 2 and 3 in Hangzhou, China
Submitted by Tim Schmanski on Mon, 2007-01-15 07:34.Good evening everyone,
Maria, Tori and I are now adapting to an entirely new and very foreign culture. We are discovering all of the language, food, currency, transportation, habits and mannerisms of the Chinese people in general. I'll provide more details on my observations and the specific differences seen in future updates. The time change has also been interesting and Maria still is the most challenged but she is slowly waking up later and later each morning. Today she awoke at 5:30am but said she was up for a little while before that. Tori and I haven't had much problems on the sleeping front and I would dare say we are adapted already.
Tori has been adjusting well to her new nurses and doctors. Her feedings are also fully back to normal at this point. Her daily schedule is now as follows:
8:30am - Team inspection. Doctors and nurses visit Tori, take her temperature, check her skin, discuss progress and any issues, ask questions, answer questions, etc..
10:30am-11:30am - Physical Therapy Treatment with James who is the rehabilitation doctor.
11:00am-1:00pm - Lunch time.
3:30pm-4:30pm - Acupuncture Treatment and EMS (Electronic Muscle Stimulation) with James.
This is repeated every day except Sunday when there are no treatments for Tori. Tori will be getting her first Stem Cell injection with NGF (Nerve Growth Factor) Wednesday afternoon. The subsequent 4 remaining injection schedules will then be determined as well.
Today Tori had her first PT (Physical Therapy) session and James twisted, turned, massaged and stretched almost every part of her body. Tori did very well for most of it and watched James quite closely. She did let out some good cries and screams when James would hit the stretching threshold. This will be very beneficial for Tori as she hasn't had this level of PT sessions for months since our insurance company quit covering it...
Tori on KUTV 2 News Utah once again
Submitted by Tim Schmanski on Sun, 2007-01-14 05:42.We were actually in the process of travelling to China when the Stem Cell Bill passed in the house and this associated story aired on January 11th. Click the title below to view the story and the video.
Utahns May Benefit If Stem Cell Bill Passes In DC
(KUTV)
The new congress is talking about the war, but lawmakers are pushing other issues.
Thursday the house passed a bill to provide funding for controversial embryonic stem cell research. And medically, it could help those in Utah in the long run.
Researchers at the University of Utah’s Research Park deal with adult stem cells, but say studying all stem cells gives us the greatest chance of curing what is now incurable.
Tori Schmanski was trapped underwater for 20 minutes following a car wreck. Now, she has limited use of her limbs, can't eat or speak.
Her parents took her to China this week, hoping an injection of adult stem cells might rejuvenate some brain function.
“There is the hope that stem cells will be the break through of the century.†said Tori’s mom, Maria Schmanski.
Dr. Linda Kelley is the director of the Cell Therapy Facility for the University of Utah.
“All stem cells stored in liquid nitrogen.†said Kelley.
The facility has thousands of stem cells taken from adults.
When a human trial is approved by the Food and Drug Administration, they prepare the cells to be used in the patient.
Stem cells are special because they can become other types of cells, helping the brain, or even the heart.
Dr. Kelley says the FDA is very careful when it comes to approving use of stem cells in a person.
“The research is not behind, what is behind other countries is translating that to human trial.†said Kelley.
The research community has a great desire to explore the benefits of all types of stem cells - embryonic, adult and stem cells from amniotic fluid.
Dr. Kelley says the money from the federal government isn't necessary, but it adds legitimacy and focus to the research.
Tori's journey is making a difference for many
Submitted by Tim Schmanski on Sat, 2007-01-13 16:30.It is my understanding that many of the articles written about Tori and her journey for stem cell treatment are being picked up by many other newspapers across the USA and even the world. My mother has reported many calls at my home from people interested and needing information on Tori's stem cell treatment. Again, I truly believe and hope that Tori's journey will benefit so many others who need help the most. My mother has been directing all inquiries to Tori's website and to the Beike Biotech China and Beike Biotech Home websites where Tori's picture and one of her articles are front page. There is a Contact link on each of the websites where information can be requested. I am also willing to assist in any way I can and can be contacted through email at admin@pray4tori.com.
In the USA, the Stem Cell Bill once again passed through the house but fell short of the two thirds of votes needed to override George Bush's unfortunate and upcoming second veto... There is an abundance of media available on this and I'm asking that you please, please contact your local congressman and inform them of your support for federal funding of various stem cell research efforts. Millions of suffering people including Tori can only benefit from the scientific results obtained.
Here is another excellent editorial on the issue where Tori's journey is used as a reference:
Stem-cell promise: Veto of funding for research would be mistake
Thank you for your support,
The Schmanski Family
Saturday, January 13th - Day 2 in Hangzhou,China
Submitted by Tim Schmanski on Sat, 2007-01-13 06:09.Hello again,
First off I want to wish Maria a HAPPY BIRTHDAY!! Someday I hope to take her again on a real, month long VACATION as a birthday gift!! When I told her it was her birthday today she didn't believe me so I had to remind her again that we are 15 hours AHEAD of Utah time. So I was eventually able to convince her she is one year older now :-)
Today Tori had her blood samples drawn and also had her rehabilitation therapy evaluation completed by James and other team members. She slept just as well as Maria and I did during Friday night and early Saturday morning. She did have some slight vomiting issues as we began feeding her the liquid Jevity through her G-Tube once again. She needed to adjust to the feedings once more so we slowed the standard rate of 110ml per hour to 90ml per hour and then built her up gradually afterward. The plan worked as she is now keeping everything down just fine.
We wheeled her to the rehabilitation room around 9:00am this morning where James and team did complete range of motion measurements on ALL of Tori's joints. They had her laying on a padded table and were twisting, turning and stretching her in every direction. Tori took it all in stride and only let out a couple of cries during extreme stretching. Now that the measurements have been taken James will really begin to go to work on her and I'm sure Tori won't be as happy then... It is all for the best though and Tori really hasn't had aggressive physical therapy for months because Maria and I tend to take it much easier on her when we do it. When the team asked if Tori was responsive I said of course and told her to "open her mouth and stick out your tongue". They were quite impressed when Tori obliged so I asked her for a "thumbs up" and a "close your eyes" to show them a little more. Tori wouldn't "use her voice" however and I told them I'm expecting her to do much better on that front after the stem cell treatments. I captured the evaluation on video tape and took many pictures as well. Hopefully I can make some of them available on the site but I'm finding the internet speed here to be quite limited at times... But we thankfully do have Skype and a VOIP phone running and are able to talk to and see video of everyone back at the house!! :-)
Wednesday, Thursday and Friday - January 10th through 12th - Travel Time to Hangzhou, China
Submitted by Tim Schmanski on Sat, 2007-01-13 00:28.Hello all,
Thank you Guy for the Journey Updates created on the site during our travel. We did arrive safely in Hangzhou on Friday, January 12th around noon and we were very, very exhausted... I've finally finished a detailed look at our travel time that consumed 39 hours total which you can view by selecting 'read more' below. The joys of international travel with a 100% dependent child proved to be quite exiting to say the least.
After our arrival on Friday we were also introduced to the team of physicians, nurses and therapists. Dr. Shi leads the team and I'll introduce you to the others in future updates. I provided them a detailed history on Tori's accident, injuries, medications and subsequent issues and I gave them over 50 pages of medical records to review as well. I am excited and anxious to hear the results of their evaluation and subsequent plans for Tori's stem cell treatments and rehabilitation program during her stay. In the early evening Tori also had another startle seizure and Dr. Shi rushed in to witness it. They aren't very fun to witness as Tori will roll her eyes back and forth and begin frothing at the mouth... Dr. Shi had a EEG done on Tori afterward while she remained in her bed. Maria, Tori and I then proceeded to sleep from 9:00pm to 8:00am Saturday morning.
As we were just arriving in China for Tori's stem cell treatment, Dave and his son Michael were just returning home after their 35 day stay. We greatly hope both Tori and Michael see vast imporvements in their recoveries.
Thank you for your continued love, prayers and support,
Tim, Maria, Tori, Whitney and Brendan
Select 'read more' below for the complete Travel Time Journal
Travel Time Journal
I typed most of this detailed update 30,000 feet above China and at 2:00am Hangzhou, China time which correlates to 12:00pm in Orem, Utah. It also marks the 30 hour travel time mark since we left our home in Orem and since we have 5 hours of flight time left plus road travel time I’m betting we’ll hit close to 40 hours… A long time for sure but with all things considered, this adventure has gone exceptionally smooth albeit with great sleep deprivation for Maria and I least. Tori is the one doing all of the sleeping and that is plain perfect and according to plan!! :-)
The Journey from Orem, Utah, USA to Hangzhou, Zhejiang, China - Part6
Submitted by Tim Schmanski on Thu, 2007-01-11 23:58.They made it!!!
Tim will be posting soon we are sure. Whitney is talking to Tim and Maria right now...
Good night everyone,
-Guy
The Journey from Orem, Utah, USA to Hangzhou, Zhejiang, China - Part5
Submitted by Guy Lunardi on Thu, 2007-01-11 08:25.Tori, Tim and Maria have not contacted us this morning. They should have landed in Paris and transferred to their flight to Shanghai by now.
Information provided by FlightView.
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Again, we are not sure if they are onboard but will try to find out.
Fortunetely, there are 2 flights direct between Paris and Shanghai later today for them to take if they didn't get on the first one.
Thanks,
-Guy
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