Thursday, November 10th - Day 144 Update
Hi there,
Tori finally broke her inconsistent sleep patterns last night with a very solid night of sleeping. All of the pumps and monitors were working properly as well so there were NO constant alarms to deal with. She slept until 9:00am and had another slight nap afterward just prior to her 11:00am PT session.
Tori went through her normal stretching routines and did some more standing and sitting. Cheryl also played some Hilary Duff music for Tori and from what I understand, Tori did seem to enjoy it. During her OT therapy she had a new treat which will make the frenchman Guy proud. Yes, Cheeze Whiz, some of the finest cheese around ;-) Tori had several spoons of it today and she didn't reject it at all. I also gave her a whole 4 ounces, or 15 small spoon portions of apple sauce tonight. She had it while Guy and Shaid were visiting.
Staci came in later for Tori's ST session and gave Tori more candy cane and 'grape slushie'. She also continues to work on Tori's 'yes and 'no' responses.
I neglected to mention that Tori was weighed earlier this week and she came in at 92.4lbs which is definitely moving in the right direction. We are hoping to weigh her again soon and another 4lbs would be great to see!! :-)
I also want to mention that Tori was very, very nice to nurse Cory tonight which was great to see!! Tori is typically the very vocal in the form of screaming when Cory is around... Tonight Tori even let Cory change her PIC Line dressing without even a scream or crying!! She just watched him calmly. Cory was beginning to have a complex so thank you Tori for giving him a little break tonight :-)
Alright, that is the short update for tonight and hopefully Tori and I will have a great night of sleep.
Thank you once again,
-Tim
tori you are doing just
tori you are doing just amazing. i love the whole cheese whiz thing. that stuff isn't that bad either. Well it's good seeing you improve so much since the last time i have been on your site. i just love you way too much. can't wait to see you in december and tell you so many stories i have had being here...people asking about you.. what they have done for ya... and there are some funny ones too. don't worry.
This can't wait until tomorrow...
After Tori received her 10:30pm medications tonight I began trying to get her to sleep just as I do every night I am with her. I always sing the 'Itsey Bitsey Spider' song to her because when she was a baby the only way we could get her to sleep was to lay her on my chest and sing that song softly over and over. While I stroked her forehead with my hand and looking directly into her eyes in the dimly light room tonight, I told her once again about all of the people who loved her so much and are praying for her and then I witnessed a single tear fall from her eye to go along with mine.
We all love you Tori and we are here for you forever. Sleep well my angel.
That is so special and
That is so special and encouraging. It did mean something to her. Don't know about that cheeze whiz tho cause GreatGrand Father was a true dairy man and lover of REAL CHEESE. HA HA!. Love,, Shirley
itsy bitsy...
Mara (2.5 yrs) loves itsy bitsy spider as well...it is one that can calm her down easily. Thanks for sharing...you've made the song all the more special for us....much love and harmony...cuz Renae
Cheese Whiz & The Itsey Bitsey Spider
Ha Ha!! I love it Cheese Whiz. HMMMM!! This is a favorite at our house, sorry Guy!! Ah yes, The Itsey Bitsey Spider, you make me cry Tim Schmanski!!! What a wonderful thing to witness, thanks for sharing that special moment cuz. Keep on singing, some day Tori will be singing back to you! I believe in you Tori!!!!
Keep praying everyone.
Love, Janine
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