Monday, October 31st - Day 134 Update
Happy Halloween everyone!!
Tori didn't really care too much for CNA Sande's purple hair and hat this evening... She liked her much better when the costume was removed :-)
Tori ended up sleeping solidly until about 11:00pm Sunday and after that she was sporatic the remainder of the evening. Tori's phlegm is very, very thick at the moment and she does NOT like to swallow it at all after coughing so she has to be sucitoned with the 'yonker' through her mouth frequently. Tori also gave Maria a little Halloween scare during the night after the repiratory technicians and nurses finished working on her. Maria didn't really watch what they were doing so later on during the evening she wondered why Tori was so quiet. When she got up to check on Tori she had a FULL oxygen mask on that completely covered her face!! They had to place it on her because her blood oxygen level wasn't maintaining very well. It came back to the normal 95% or so after a while with the mask on.
Tori's blood cultures are still negative and I also called the HSH and the blood cultures we took there Friday night were also still negative. The sputum or phlegm sample however has turned up positive for a bacteria of some kind... We will keep her on the anitbiotic Levaquin until we know more.
Tori also had yet another GJ-Tube plugging incident and this time BOTH the G and J Tubes plugged simultaneously!! When they took her down to radiology again to check it they found that the two tubes had intertwined around each other inside of her stomach and bascially kinked and plugged themselves... Tomorrow we may just upgrade her GJ-Tube once again to a 22 french gauge G-Tube portion and a 10 french gauge J-Tube portion. The bigger tubes should be much less prone to plugging. The nurses are doing everything right when using the existing tubes but they still tend to plug too easily. Again, at some point we are expecting to just have a G-Tube but until then we need the J-Tube working as well. Tori is still getting her feeds and TPN at this point.
Tori is very relaxed tonight and looking great with absolutely no agitation. She just recieved her 10:00pm medications and she 'appears' ready to go to sleep. She has been awake for the entire day so I'm sure hoping she is tired tonight.
Thanks again all and good night,
-Tim
She was having a Great Halloween until I walked in...
Yes the purple hair and the witches hat did give her quite the shock...It was so nice to work with her last night. She slept so well for most of the night. About the full oxygen mask...personal thoughts are that after watching her with a nasal cannula, it is helpful when she is breathing through her nose...when she sleeps...she sleeps like I do and breathes through her mouth.
-Sande
Re: Monday, October 31st
I had forgotten that Primary Children Medical Center (PCMC) was a children's hospital but we were reminded today.
The entire staff was wearing costumes (some dressed as doctors and nurses). But really, I think we saw every single Disney character today up there.
Talking about Disney, they had the first case of bird flu in France. It was in Disneyland Paris.
see below...
Bird flu in Disneyland Paris.
Happy Halloween,
-Guy
thanks
Thanks - There hasn't been much to smile about lately when I visit Tori's site (darn GT tubes, temps, EMT transports, cultures....so many children in need of thoughts and prayers...but feeling glad that Tori seems to be on the mend again...)This was really great! Thank You!
trick or treat
This was both a trick and a treat -- thanks for making us laugh! All of you are so awesome -- having a sense of humor with all of this turmoil going on. I hope that Tori got a sucker on Halloween. Always remember that you are always with us spiritually - in our thoughts and prayers every day! All our love Auntie Jill and Uncle Donny
Re: trick or treat
Hello aunt Jill and uncle Donny,
We will have to ask Tim to confirm but I believe he gave Tori some pumpkin pie and whip cream last night when he got there.
As we all know him, I am surprised there was any left by the time he got to the hospital.
-Guy
RE:Pumpkin Pie
I would not doubt that. MMMMM!!! Pumpkin Pie!! As long as it is not sushi!!! hehe....
janine
Recent comments
8 years 25 weeks ago
8 years 45 weeks ago
9 years 3 weeks ago
9 years 5 weeks ago
9 years 5 weeks ago
9 years 5 weeks ago
9 years 5 weeks ago
9 years 5 weeks ago
9 years 5 weeks ago
9 years 5 weeks ago