Sunday, October 9th - Day 112 Update

Hello,

Tori had another good night of sleep Saturday evening and early Sunday morning. It finally appears that we have her on somewhat normal sleep cycles once again. We have been using various bright and dark lighting in her room to help with this as well.

Tori once again stayed fully awake and aware during the day today and had numerous family members and visitors. Uncle Todd and aunt Laurie hadn't seen her for a while and were amazed at her newly found tracking, focusing ability and head movement. Her sensitivity to touch is still evident but it is greatly diminished.

Tori had more great tastes of a strawberry dum-dum sucker and a green apple blow-pop today. Many of Tori's visitors today witnessed Tori eagerly accepting the suckers and quickly swallowing afterward. Tori also thoroughly enjoys getting her mouth swabbed and teeth cleaned and brushed. She never bites down on the brush anymore and seems very comfortable with it in her mouth.

Her vitals stayed great once again today but we didn't try plugging her yet... Trying again for tomorrow I guess. It was also mentioned today that tomorrow will conclude Tori's antibiotic medications if the growth results from the samples taken yesterday are negative. We are now going to try and get her into a standard medical room if possible and our main goals are to get her trach removed and put 10 lbs or weight on her. Since the bilious output from her stomach is now almost non-existent we would like to try getting medications and feed into it as soon as possible. Working with a straight G-Tube rather than the GJ-Tube is just so much easier. We feel that all Tori needs is a little time WITHOUT getting sick again to accomplish these goals!!

Thanks again everyone and until tomorrow night,

-Tim