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Sunday, October 2nd - Day 105 Update

Submitted by Tim Schmanski on Sun, 2005-10-02 20:44.

Hello all,

Tori's was removed from the ventilator all together today and was only given humidified room air through her trach. Once again, she maintained her vital statistics throughout the day as well. The cultures taken several days ago have still NOT had any growth so it appears once her antibiotic doses are finished she will be ready to go once again. Tori will probably be moved to a general hospital unit at the UVRMC tomorrow.

Tori once again received her PT therapy twice today and one of the therapists mentioned the left side of her body seemed much more relaxed and flexible than her right. Tori also took a couple more hour long naps today and Maria and I washed her hair and gave her a sponge bath as well. Valium and Loretab had to be given to her late tonight to calm her down. We are still guessing that it is the SMA syndrome causing her pain because we have nothing else to indicate it is something else at this time... It is also time to weigh her again and see if we are making any progress on that front.

And that is another short report for tonight.

Thank you,

-Tim

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keep going Tori

Submitted by Nicoliyoli on Mon, 2005-10-03 20:27.

Hi Schmanski Family-

All of us on CMU at Primary's are rooting for you and continue to pray 4 tori. We have had numerous parents ask about our orange bands and we get to share Tori's story with them and many of them have gone to the website to read about Tori. We will continue our prayers for you Tori and continue to update each other on your progress. We love you and miss you and hope that someday you will come back to see us as a guest and not as a patient! Best wishes and our thoughts are with you and your family!

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