Tuesday, September 27th - Day 100 Update

Hello,

From the Monday evening nurses report, Tori slept quite well overnight with only her melatonin and bennedryl doses. When I arrived this morning Tori was still sleeping.

At 9:00am she finally woke up and was very calm with good vital statistics as well. She received some very minimal PT today that consisted of basic hand, elbow and arm stretching. Tori is extremely sensitive to ANY touching right now so she trembles greatly and becomes agitated during any touching... This is a typical behavior when she is sick but it seems accentuated this time.

Tori also had another chest x-ray taken today and it showed very little clouding or symptoms of a pneumonia again. This was confusing me so I asked the ICU doctor once again whether or not she really has a pneumonia. He now believes she may have a case of Bronchitis caused by the infection from the Staphylococcus aureus and Bacilli bacteria identified in her Phlegm. I'm not sure what to believe at this point... The antibiotics will fight the bacteria none the less.

The medication I had them remove last night was Ragland which has seizures listed as an adverse side effect. We didn't see any of the seizure like symptoms all day so we thought we had found the right medication. But tonight we are noticing some more seizure like activity in Tori... It is more of a physical limb jerking rather than the eye movement which the doctors believe may be Nystagmus. So now we are looking at the antibiotic Cefepime as a possible culprit. Again, we have not seen this behavior in Tori before so we are speculating it is due to a medication. That is all we have to go on. There is always a chance we could be wrong of course...

We will try and remove the ventilator from Tori tomorrow and see how she responds. If she does well throughout the day we might move her to the standard medical unit of UVRMC. We shall see what happens. After that we unfortunately don't know where Tori will land due to other issues...

That is the short report for tonight.

Thanks,

-Tim, Maria, Tori, Whitney and Brendan