Monday, August 15th - Day 57 Update

Well... The sleeping 'cocktail' Tori had didn't do the trick last night for Maria and nothing else did either... Tori did not sleep at all last night or today and just barely went somewhat asleep about an hour ago. So basically she was up for 35 hours straight... I reviewed my updates and it appears she went over 40 hours without sleep at one time so she didn't beat the record at least.

Tori was more agitated during the night than she was during the day and perhaps it was due to how tired she had become. Very, very tired but still awake... Marilyn, Michelle, Angel, McKenzie and Kourtney all came to visit and she seemed to enjoy the company though. I'm sure she is bored of Mom and Dad by now so any change is welcome ;-) She is still running a fever of 38-40 degrees Celsius at times. Her lungs also have alot of loose Phlegm inside of them and we noticed today that the color of it is totally new to us so they took a few cultures. She is so raspy in her breathing that the doctors have ordered her to be bag cleaned every 4 hours. Again, with bag cleaning the respiratory technicians force air into her lungs to loosen up the phlegm to be suctioned out of her trach. Once they are done Tori breathes very smoothly for a while.

Tori's NJ-Tube became plugged today so they had to take her down to radiology to have another one inserted. She did much better this time and put up little fight because she was exhausted. Her feeds are once again at 85 milliliters per hour.

One item I haven't spoken about much lately is her lack of Myoclonic Tremors. They are simply non-existent for the most part but we don't know if this is due to the Keppra dosages or that she is just not feeling well. We will find out shortly when she finally beats off the Cocci bacteria.

My goal for the night is to keep her sleeping so she will be very awake in the morning for the therapists and a wheelchair ride. It might take some Valium to enable this for both of us. Just kidding there, Maria or I can't seem to get our own supply of medications while we are here... ;-)

Thank you and good night everyone!!

-Tim