Monday, October 6th through Monday, December 15th

Hello all,

I am well overdue for an update once again... My apologies but please keep with the premise that no news typically means all is well. Tori's health and demeanor has been steady for the past two months. She became ill once during that time and required oxygen for a week but that is about it. She is still getting therapies and visits from her teachers at the high school numerous times per week. When she is aware and willing to participate she typically can get 80-100% of her answers correct through eye gazes. Everyone who works with her agrees that Tori certainly does have cognitive ability and getting that consistent communication method is still the challenge.

We have yet to make a decision on the spinal fusion surgery for Tori... The risk involved makes us very wary and we will need to meet with the physicians again in January before deciding. Another medical option for her spasticity and muscle tone was also brought to our attention and it would need to be done prior to the spinal fusion procedure so this enters into the equation as well.

The holiday's are upon us once again and this inevitably means more difficult times for the rest of us unfortunately... This year is no exception. We all miss Tori so much yet she is right here with us... It also seems we can never get ahead on all of the various and many issues we deal with on a day to day basis. It is all so tiring, challenging and overwhelming at times and once one issue is solved there are ten more following it... Sorry to vent a little but this is our reality.

We did have a nice Thanksgiving break though with my brother Todd and his family visiting as well as my other brother TJ and his family staying over the weekend. Grandpa and Grandma Schmanski were also here but have since left the winter weather here for warmer weather in Nevada. They will return again around Christmas time.

We were deeply saddened and moved last week with the passing of Lauren Miller ( Laruen's site and Article on her passing ). This has affected us all greatly as it all hit's too close to home for us... Please keep Bonnie, Doug, Ryan and Amber in your thoughts and prayers during this very difficult time for them and everyone else who is also morning for Lauren who has inspired us all with her journey. God bless you Lauren and we know you have now found peace.

Thank you for the continued love, prayers and support,

The Schmanski Family