Friday through Wednesday, May 25th through 30th

Hello again everyone,

Tori has finally calmed down lately and is once again adjusted to being home. She is back to being rarely agitated during the day and night and her sleep schedule is back on track. She sleeps throughout the night and that is plus for all of us as we only need to wake up to reposition or change her. Tori was in the press again as she was noted in a couple of recent Salt Lake Tribune articles. The first was Stem Cells: Hope vs. Hype in the Sunday edition where Tori was mentioned followed by the articles title 'Some go outside of the U.S. for stem cell treatments' and 'Orem parents take their brain-injured daughter to China and encourage others to do the same' in Monday's edition.

There is a charity golf tournament going on this weekend in St. George, Utah and the proceeds will go to the Tori Schmanski fund and the Spinal Cord Society. The event takes place at the St. George Golf Club and tee time is at 8:00am Saturday morning. The cost is $75 per golfer and there are plenty of openings and sponsorship opportunities still available as well. For all that are interested please review the Tournament Flyer which contains contact information and a nice picture of Maria and Tori. For those already in the St. George area there are television commercials running on the local channels as well. We hope to see some of you down south this weekend!! :-)

Tori went to the PCMC in SLC again on Tuesday and her baclofen pump rate increased 100 micrograms per day. She is now receiving 1100 micrograms per day. We are thankfully seeing some results as she does appear to be 'looser' in her upper body especially her arms. I don't think we could get a good read on this over the past week and half because she was in pain and very tense through that time. There was no way to visibly tell by touching and moving her arms. Now that she is much more relaxed again we can see a difference. Depending on how she does during the next week, we might try another mode in the pump. There is a 'burst' mode which can deliver a larger dose of baclofen at specified times instead of the tiny yet continuous dose she is receiving right now. We'll wait and see at this point.

Thank you,

Tim, Maria, Tori, Whitney and Brendan