Tuesday through Sunday, April 17th through 22nd

Good evening,

It appears that Tori, Tinkers and I survived the week while Maria, Whitney and Brendan were in Las Vegas for spring break. They left Wednesday morning and Grandma Harris stayed at the house helping me with Tori until early Saturday afternoon. I ran back and worth from work during the week to help with Tori who did just fine with her Grandma for the entire time. We even drove up to SLC to shoot a commercial for an upcoming Golf Tournament in St. George and I'll be sharing the details on it here shortly.

After the commercial shoot we stopped at the Red Lobster where Tori had some shrimp, crab meat and some diet coke. She did very well during our early dinner by eating nicely and remaining calm and attentive throughout. Tori continues to eat better and better and she even ate and entire string cheese stick during the week. We also went to dinner at Applebees with my brother Todd, Laurie and their family on Sunday afternoon. Tori did just fine once again and ate some french fries and drank more diet coke. The extra eating combined with the additional 500+ calories per day of liquid nutrition has brought Tori's weight back up again. I'm not sure by how much but I can tell she is heavier when I pick her up to place her in her wheelchair. We'll see just how much she has gained later this week at the Shriners Hospital.

After Tori spent Saturday morning outside watching me mow the lawn, I decided to take her out to a movie. We went and saw "Night at the Museum" together and we both enjoyed it of course. Afterward I took her for a drive around Orem to check out the town. She spent the majority of the weekend in her wheelchair with Tinkers and I watching movies and basketball games. She was very calm, aware and attentive during the entire weekend and was just slightly agitated only a couple of times.

Tori had PT and ST sessions last week and Royal is seeing even more improvement in her stretching and limb range. I also continue to provide PT as I can and it's to see the Tori can rest her arms down along her sides. She continues to do well with her nightly arm raises and movements as well. Meredyth's ST session this week was very encouraging and pleasing because Tori was so engaged in the exercises. Meredyth did more card games where she would write the same word on two sheets of paper and purposely misspell it on one of them. I happened to be home to watch Tori accurately identify by looking at the misspelled or correct word when asked. I still find myself questioning just how aware she is but seeing her in action like this always gives me more hope. It is always encouraging to witness and I hope and pray she continues to surprise us all!!

As mentioned above, we will be going to the Shriners Hospital this week to get Tori's tendon release surgery scheduled. That will give us another item to 'look forward to' I guess. I'm not sure Tori will agree with that though...

Finally tonight, Lauren and Chris continue to do well while on their journeys to China for SCT. Jonny is also planing his trip to China and we wish all of the very best. Hopefully everyone will see the very positive SCT results that Gabor and Terry are currently experiencing.

Thank you for the continued love, prayers and support,

-Tim

Another one..

Tim,

Not to downplay the improvements of all of the people you mentioned but I just found another patient that had something great happen and it really made my day. Take a look at Brooke's blog.. Brooke was filmed by NBC Nightly News while she was at Hangzhou. The story has not come out yet and so far it is only going to include footage that happened while at the hospital (luckily there were some improvements while there) but I am also encouraging them to do a follow up and also try and get the Today show to do something. Probably will not happen but I can at least try.

http://blog.brookebarels.com/

- Jon

Re: Another one..

Ah yes, I mentioned Brooke's progress a few updates ago and it is quite impressive as well. I hope they get NBC to cooperate and do something with her story as well.

Thanks,
-Tim