Monday and Tuesday, January 22nd and 23rd - Day 10 and 11 in Hangzhou, China

Hi Diana,

Thanks again for your input and support and I replied to your original post and privately as well because I felt obligated to all of the people who are watching Tori's site and contemplating Stem Cell Treatment for themselves or their loved ones. This site provides invaluable information to them all and there are more than anyone can imagine. Some of them have even inquired about Diana's post. So my findings on it are below and can be used as needed or not:

Diana,

Thanks for your input Diana and I have spent a few hours extensively researching both positive and negative aspects on Glyconutrients, Ambrotose and Mannatech itself. In being open, honest, and frank as I always am, there are plenty of negative views particularly on Mannatech primarily because it is MLM (Multi Level Marketing) based and yes, you can also extensively research in a few hours with Google :-) I also live in Utah which is the MLM capital of the world so I understand them quite well. First off, it is highly misleading and an absolutely HUGE stretch to try and compare ANY nutritional product that MAY have the potential for 'helping your cells communicate' and for being 'likely responsible for causing the body to manufacture its own stem cells' to actually receiving 50 million adult stem cells and nerve growth factor. It should certainly NOT be considered as an alternative solution to Stem Cell Treatment and realistically cannot even be compared to it but it MAY be a complimentary solution. I state MAY primarily because there is NO clinical and peer reviewed data available on Glyconutrient benefits to human beings to back up the marketing claims made in your post. The product disclaimer indicated on almost every website I searched also validates this fact.

Even given all of that, I would still agree that some of the scientific analysis on Glyconutrients and the proposed benefits associated to humans seems plausible. Whether it warrants some of the product prices I reviewed I'm not nearly as sure. That fact combined with Tori's extremely sensitive digestive system makes me hesitant to try but if you are willing to donate a few months of the Glyconutritional supplements on trial basis I would probably consider it further and I am being very sincere on this request.

Please let me know through private email and thanks again for your input and support for Tori. As I have always indicated, I will at the very least research and consider any treatment that may possibly help Tori in her recovery and I stand behind that. I might not implement them all but I will be opened minded my research.

-Tim

While it was my sincere intention to offer information to you that might help your daughter, you have reduced that intention, and I'm not sure why. I do not downplay China’s outstanding work, nor the validity or need for that work. What I have said is that there may be an alternative – a non-invasive and less expensive alternative – whereby glyconutrients help support the proliferation of one’s own stem cells (without any procedures being done), and then migrate and repair the body – all done with one’s own stem cells instead of someone else’s. To say that there is no evidence to that effect is wrong. And it worries me to think that people who desperately need stem cell treatment think they have to wait until they can acquire a large sum of money to get that treatment, and hold off getting that treatment while suffering in the meantime – especially when they simply don't know that there’s an alternative.

It is not my intention to have a debate, but to merely show that there is a wealth of information regarding this new technology that has changed so many lives already. If you have not already done so, please, more than anything that you research, go to www.mannahealthintl.com to view the 15+ educational videos and hear the testimonial audios of doctors who endorse and use glyconutrients themselves and have given them to their patients. See and hear the evidence for yourself. There is another website you can go to, www.vitalcarbs4life.com, where you not only can hear audio testimonials, but you can see how much scientific validation there is; and then of course, www.glycoscience.org for the scientific studies and clinical trials that have been done. Doctors use this site themselves, not to mention the Physician's Desk Reference.

Please also research MannaRelief, an organization that donates glyconutrients to orphanages worldwide for children that have life-threatening illnesses. MannaRelief also offers product in the U.S. to children up to age 18 on a less expensive basis if someone can sponsor that child at $125 a month. There is no compensation for any associate through this organization.

In Fisher Institute for Medical Research’s site, www.fisherinstitute.org, you can see the case studies that have been done, if you go to “Order” and then click on the “Proceedings” volumes. Fisher has a program where the people involved in their case studies can get the product for less. Here again, associates do not get compensated. These organizations might be able to help you continue your daughter’s improvement when she returns.

Tim, please look into this further. I would hate to think that a door would be closed on something that could be of so much benefit.

Diana

Diana,

I do not doubt that your intentions are sincere, my intent was to to clarify the clearly distinguishable differences between the stem cell treatments Tori is receiving and additional nutrition from glyconutrients as Koo Choo validates in her post on Glyconutrients as well. Your original post stated "that there IS an alternative" to stem cell treatments which simply isn't true and that is what I am trying to dispel. It truly is an apples to oranges comparison. Again, glyconutrients may or may not be a complimentary solution to neurogenesis and I can find just as much research that indicates improvements are NOT guaranteed for everyone who takes them. Everyone's body naturally creates stem cells through bone marrow regardless of glyconutrients. The premise behind glyconutrients, which is basically just 8 types of sugar, is that they can enable this process even more. It concerns me when you explain in absolute and imho 'sales person' like terms such as "Stopping glyconutrients stops the ability of your cells to communicate correctly with each other – that stops their ability to recognize disease – which then allows disease to set in" which again is simply untrue because your body naturally does all of this anyway. Believe me, I have reviewed all of the sites you mention and many more without the Mannatech connections identified by this very informative and unbiased glyconutrient site. I would encourage you and anyone else out there researching glyconutrients to read it in it's entirety. Educating oneself and exploring ALL research data and opinions, both positive and negative, is the key to making informed decisions. Unfortunately, there those who won't complete due diligence before making those decisions... I'm certainly NOT one of them.

Again, with all of that stated, I haven't totally ruled out adding glyconutrient type solutions to Tori's care plan whether it is through diet control, Mannatech's products, other products or even home grown solutions which are available on the internet as well. I'll probably speak in depth with Koo Choo about her findings and try to locate others in Tori's condition who have tried them as well before making a final decision. Of course all of this will wait until we return home.

Thanks again Diana and Koo Choo for your valuable input and I'm sure others exploring stem cell treatments and glyconutrients will have plenty of data to make their own informed decisions.

-Tim

Diana,

I do not think Tim intended to diminish your good intentions; he was just clarifying the facts. I have to agree with him that the glyconutrients you mention and the stem cell treatment that Tori is undergoing are miles apart. I also want to emphasize that the glyconutrients are NOT an alternative to the stem cell treatment Tori is receiving in China right now.

My husband Chris Barnes has sustained a similar injury to Tori. Chris has been having glyconutrients from Manatech for several months. I have sat in their seminars, seen the videos, and spoken to people who had good results with glyconutrients. I also researched other nutritional and alternative routes to help Chris neurogenesis process by providing him different supplements (Ambrotose being one of them). We all want to try everything possible for our loved ones.

Chris is going to China in April this year. The treatment he will receive there is absolutely not comparable with what the glyconutrients can potentially do. The stem cell treatment in China encompasses stem cell injections, coupled with daily rehabilitation and many other things. The loss of neurons Chris and Tori underwent would require more powerful stimulation that glyconutrients could EVER trigger. They are two distinct options.

Koo Cho

Dear Koo Cho,

Thank you for contacting me. There are a couple of things, however, that I would ask you to consider. Did your husband have any other health issues prior to his injury? How much of the glyconutrients did your husband take on a daily basis, and for exactly how many months? When you said “several,” that did not seem like a long enough time period. Some people take longer than others to get results, because people’s bodies are different and their cells recreate at different rates and points in time.

I would also ask if your husband is still taking glyconutrients? I ask this because, when your husband gets the stem cell therapy in China, those cells, plus the ones he already has, still need to be correctly structured in order to continue helping him. This, as you know, is what glyconutrients do, besides proliferating more stem cells in the body.

Cells are constantly dying and the new ones that your body acquires on a daily basis need to be correctly structured for the life of those cells in order to be able to fight disease. Each part of the body has a different cell life - some cells can last for years before dying off. This is why glyconutrients are important to continue taking, because you never know when a cell will die and another one be created.

Stopping glyconutrients stops the ability of your cells to communicate correctly with each other – that stops their ability to recognize disease – which then allows disease to set in. The cells would no longer be protected.

Since this will be my last post, I want thank you for responding. I wish your husband much success with his treatments, and that both your lives be blessed with good health.

Diana

Shirley,

Just wanted to chime in that I am from Minnesota as well. Mpls. Also, there was a patient with spinal cord injury that just left from Nanshan hospital. He had fairly good results but he lives up by St. Cloud.

- Jon

Hi Jon from Mpls. Are you there with a patient? Tim did say someone was there from St.Paul. Lots of names have passed through this site (while in China)and with a MN. connection-very interesting. My husband & I started married life there (Mpls) and so did Tim's parents. Tim was born there. We now live 20 miles from St. Cloud. Shirley