Tuesday and Wednesday, January 16th and 17th - Day 4 and 5 in Hangzhou, China

Hello again,

During Tuesday Tori had more PT (Physical Therapy), Acupuncture and EMS (Electronic Muscle Stimulation) and at 4:45pm Wednesday afternoon, she went into a sterile surgical room for her first stem cell treatment. It went very smoothly as Tori was given some Valium once she entered the room and the procedure was done after about 45 minutes. She then had to lie flat on her back for at least 6 hours and to accomplish this we positioned her DVD player right above her so she watched movies while looking up towards the ceiling :-)

Now that Tori has officially received her first stem cells and NGF (Nerve Growth Factor) via intrathecal injection into the spinal canal and intravenously as well, I believe it is time for some biological and scientific detail on exactly what she is receiving. Below is an accurate summary and you can select the hyperlinked words for additional detail on them. In highly over simplified terms, we are attempting to build new brain matter in Tori to replace the damaged or dead brain matter that currently exists so that overall, Tori will have more brain matter to work and heal with.

Tori has received Umbilical Cord Stem Cells known as CD34+, CD133 and Mesenchymal stem cells. CD34+ and CD133 have been shown in numerous studies to be prone towards becoming white matter which is what neural stem cells and myelin are made of. Mesenchymals have been found to be inclined to be become numerous types of cells including but not limited to chondrocytes (a type of cell critical to tissue renewal particularly cartilage), liver cells, Kidney and neurons. Lab tests have also indicated that when Mesenchymal stem cells are combined with other cells such as CD34+ and CD133 they will boost the process of the transformation of other types of stem cells into becoming what they already have a tendency for such as white matter. These Mesenchymals also appear to be able to conduct repairs in relation to vascular disorders within the brain, ocular areas and throughout the body including but not limited to the heart, Kidney and pancreas.

So Tori now has one SCT (stem cell treatment) completed and four more to go!! :-)

James also had Tori inclined on the tilt table twice for several minutes on Tuesday. She was placed at a 52 degree incline and it was quite obvious she hasn't been in vertical position for quite some time because her legs turned purple after a few minutes. Her circulation is poor and her left foot still isn't ready for too much standing at this time... We gave her left foot some heal support so she could place her weight on it for this exercise. She'll be on the tilt table several times a week.

James continues to do heavy stretching and massaging on Tori and she responds at times with loud cries... It is all very good for her though and James can read her pain thresholds well. Tori is usually much looser after a session and typically takes a nap to recover. She did much better with her acupuncture on Tuesday as well since we decided to give her a half a Xanax beforehand to relax her. Both Tori and James greatly appreciated it ;-) The EMS was connected to her arms on this day and it will be rotated onto her limbs daily.

Tori had another doctor arrive and try to perform an IQ type test on her where she was shown a picture with a problem displayed and Tori was supposed to identify it. That is very hard to do for Tori since she can't point yet with precision. The first picture had a comb missing some teeth and Tori was able to bring her right hand upward and position her thumb on the error. The next picture had a cat missing an ear and Tori struggled to get her right thumb to the correct spot which she eventually did. At that point she was too frustrated to continue and stopped participating... The session was over but we showed her a two answer example of 'cat' and 'dog' and Tori identified the correct choice by looking. We are now going to get some paper and demonstrate later Tori's ability to select.

Maria is still almost completely adjusted to the time change now as she awoke at close to 6:00am Wednesday morning. She cut out the afternoon nap Tuesday and I'm sure that helped alot. We have been alternating exercise days at the New Century Hotel and we have found some favorite Chinese food selections. Our first couple of meals were from a 'Western Style' restaurant but the spaghetti, grilled ham and cheese sandwiches and pizza were a far, far cry from being 'tasty'... So I finally asked Wendy where her and the medical staff gets their take out food and we've been eating from that Chinese restaurant since. Ham fried rice, white rice and the diced chicken and peanuts in chili sauce are our favorites. The eggplant in chili sauce is good as well and I have at least tried almost everything on the menu. There were certainly some items I didn't care for though... 'Diced' is a key word to remember when selecting food because it appears to mean 'no bones'. Otherwise the bones in the chicken and pork are prominent in any dish and typically it is ALL of the chicken minus the feathers!! We are definitely getting better using the chopsticks though. You can't get better back home by eating once a month at the 'Panda Express' or 'PF Chang' restaurants ;-) In my next update I'll discuss some of my Chinese transportation, pedestrian and traffic observations.

Thank you for the support!!

Tim, Maria, Tori, Whitney and Brendan

Checking in

We are so happy to hear things are off to such a great start for you. We have been checking in on you every day. You do such an excellent job with your information on the updates. Last night, I spent many hours reading back updates, and can't believe how familiar our feelings are. The love a parent has for a child is overwhelming, and to see them hurting or in the situation we are in, sometimes feels so painful. We are so impressed with your trip thus far and hope and pray for the very best outcome possible. It makes us wonder if it is something we should or could do for our Chelsea. I have to say, that Tori and Chelsea remind me a lot of each other. They both are dancers, the oldest in their family, they have big plans for the future and are social butterflies! And unfortunalty have both been in a tragic accident that has for the time being placed them in these bodies that they can't do the things they were once able to do, and they are in there! We know it. Well, keep up the terrific work and thanks for your example. Give Tori our best wishes. We are praying for you all, after all that is the best thing to do. Pray, trust, and believe! Love The Franklin Family(www.prayforchelsea.com)

Exciting News!

I have been following Tori's recovery for a while - found the site through prayforizzy. This trip and the stem cell treatment is so interesting and so exciting! I have added Tori to my prayer list and am keeping her and your family in prayer. Thank you for sharing this exciting journey and I look forward to reading about the wonderful results this trip brings about in her recovery.
annb

To let your know....

Tim, To let you know. I contacted someone at the St.Cloud Times newspaper here, about Tori,this trip, etc. and he is interested in doing a story. I know you wrote of other papers doing the story. Love & Prayers and much success. Shirley

Re: To let you know....

Thanks Shirley. Yes, all of those other newspaper articles are here. Interestingly enough, the new person from the US that arrived is actually from St. Paul, Minnesota so perhaps they could have a local slant on the article. She has Multiple Sclerosis and is with her husband on this trip for stem cell treatments. If you can send me the reporter's email address via admin@pray4tori.com I can get it to them and of course I would be interested as well.

Thanks again,

-Tim

Very, very, interesting

Wow Tim! That is very interesting. Hi! My name is Brittany. I have lived in Orem all of my life (23 years) and I have one sibling (Cody, 14 almost 15).....he currently goes to Oak Canyon. I have been following Tori's story, like many, and I have just been to scared to comment. So, here it goes. :) I am a Certified Medical Assistant and we didn't really learn a whole lot about stem cell treatments. I find all your blogs VERY interesting and educational. Keep it up! You are doing well and you seem very knowledgeable in your daughters care. That is always good. I recently lost my father in March of last year (we would have been 50). He suffered from Rheumatoid Arthritis for almost 30 years. He was always in and out of the hospitals having surgeries. He just had a complication and it was his time to be called home. Clearly, Tori has a mission here. She is a beautiful young lady. Keep us posted. I can't wait to hear about Tori's improvements. I know it will go well. Also, my brother knows both your girls. I don't know if he knows them well, but he did say that Whitney was in his keyboarding class. But, he could be wrong. Well, here is my comment. Right now I'm watching American Idol (really funny actually). :)

Interesting

Tim,

First,I'm glad to know that the first step stem cell treatment for Tori is successful and she became better. I pray for the next four steps is same successful and she will finally become same as before, absolutely!

Then, I have to say, your observations is very clearly and sharp, reading your artical make me very happy and surprise, such as you said "diced" appears to mean no bones is correct, and your feeling about western food restaurant in Hangzhou make me smile:-)

Waiting for your next post, wish more good news about Tori and interesting things you find will in it.Please say hello for me to Tori, thank you.

God bless Tori, Maria and you!