Wednesday, August 30th - Day 438 Update

Good evening,

Tori slept very well Tuesday night but she had far more myoclonic tremors today than the previous couple of days... She had the tremors almost all day and that makes it a rough day for everyone unfortunately.

Tori finally fell asleep around 5:00pm tonight but she didn't sleep long so I put her in her wheelchair. She did better while in it and we were outside for quite a while visiting with neighbors and watching Brendan, Lily and Owen play together.

We are now giving Tori 125mg of depakote 3 times daily and will almost double that dose in 5-7 days. We are hoping to stop around 500mg doses 3 times daily. Tori was getting 1500mg doses 4 times daily before which relates to a whopping 6000mg per day. We would have great progress if we could get her myoclonus in check with 1500mg total per day. Anyway, it is all about setting goals and that is what we are shooting for and we should be at that level in 2 weeks or so. Then we begin removing the keppra.

Tori is sleeping very comfortably now and we are hoping and praying for a better day tomorrow. Tomorrow should also include some therapy sessions as Tori PCMC trip has thrown her schedule off a bit.

Thanks you,

-Tim