Monday and Tuesday, August 28th and 29th

Hello again,

Monday proved to be a relaxing day for Tori who had no therapies and thankfully no seizures as well. She did a have few episodes of myclonus though but not as bad as we have seen lately.

Today we headed to the PCMC in SLC for a visit with Dr. Benedict the neurologist and for another KUB scan on her abdomen. We have decided to officially end the removal of depakote experiment we have been trying!! Tori's comfort takes precedence at this time but we plan on introducing the depakote back very slowly and we are confident we will end up with an adequate dosage that is lower than the original one. The keppra will also be slowly brought back down to original levels and it may become the next medication we try and remove.

Tori actually did very well with Dr. Benedict and closed her eyes, opened her mouth, stuck out her tongue and moved her thumb and pinky finger on command. This is unusual because she typically won't do any of that with strangers... I also told her to use her voice and say hello and she responded with a nice 'yaaaaa'.

We then went down for the KUB scan where we laid Tori on a table and took a couple of x-rays. This time we decided to just stick around and wait for the results rather than heading home and getting called back like last time... We were pretty confident she was alright and after about 15 minutes we had the results that thankfully confirmed that. Then we were on our way back to Orem!!

Tori only had a half a xanax during the day today and was quite calm and relaxed. For a snack she had some cheese and water. Tomorrow the therapists should be beginning their weekly visits.

Thanks again everyone,

-Tim