Tuesday and Wednesday, August 22nd and 23rd

Hello again,

We have been very, very busy lately with all things Tori, the golf tournament, an IEP (Individual Education Program), school starting for Brendan and Whitney, WORK!!, etc.. Thus the numerous dual day reports as of late. I'll try to get back on track though :-)

Tori had a rough night Monday night and we haven't seen one like it for quite a while... She woke up about 3:30am and stayed awake until 6:30am. She was trying to watch a movie during this time but she was agitated and had myoclonus 'jerks' going as well... After trying numerous medications to calm her we finally had to give her some valium which again, we haven't given her for some time. Tuesday night was a little better but she did have some trouble again that required some more valium. We are hoping for a better night on Wednesday.

Tori continues to have myoclonus episodes and the depakote dosage went to zero this weekend. We upped her keppra again to try and compensate. Unless we see some dramatic improvements within the next week or slightly more I am going to ask that we bring the depakote back. Tori is simply much more miserable and uncomfortable than she was before the removal of depakote started. We realize liver issues but she just can't go on like this... We are waiting for the neurologist's response to my proposal.

Tori continues to eat more and more!! She had some barbecue chicken, spaghetti, peaches with whipped cream, ice cream, popsicles, you name it and she is trying it. During dinner time we make sure she is in her wheelchair and let her sample and eat with the rest of us and she certainly enjoys it!! :-)

The golf tournament scheduled for Friday is coming together nicely!! We are so excited for this event and there has been ALOT of effort in putting it together. Thanks again Erick!! Friday is going to be fun for us all!! :-)

I met with numerous people in the school district and we have devised a schedule to get Tori started on various tests they provide. Getting a consistent communication form from Tori will be key and getting her to work with new people will be as well. I should have the EagleEyes computer this Friday then we can begin really using it and putting it to the test. I am greatly hoping that it will be the interface we are looking for. The goal for the IEP team is to have several tests complete within 30 days. They will also provide ST, OT and PT through the school and it will be interesting to see how Tori responds.

Thank you all once more,

-Tim