Thursday, October 13th - Day 116 Update

Hello,

Tori and Maria spent Wednesday night at the HSH and Tori slept well until about 2:30am and was intermittently sleeping after that. This caused her to be sleeping during the morning once again so her PT and OT therapies were not as interactive as we would like. Guy is staying with Tori tonight and she is sleeping as of 10:30pm.

Guy and I also helped Tori onto her new air mattress which is supposed to help in the prevention of bed sores. Tori has been very lucky not to have had any bad bed sores but that is primarily due to the fact we try and consistently move and re-position her every two hours. She is pretty much 'floating on air' at this time.

Tori's PT consisted of full stretching on her legs and arms and some of the OT had her sitting up in her bed for an extended period of time. Guy was the one who mainly extended it by sitting next to Tori on the bed and balancing her. Tori does very well with her neck and head control while doing this and we will try and repeat it everyday to strengthen her neck even more.

Tori's button trach was plugged for the entire day once again and she did well once again.. Her vital statistics maintained adequate levels throughout the day. They removed the plug tonight so Tori could sleep a bit more comfortably.

We are still having to wear the yellow gowns and other garb while we are in Tori's room... The MRSA bacteria growth results are still negative which is a good sign but Tori does have a type of staph infection on her nose that is being treated.

We will attempt to plug the pin head sized hole in Tori's GJ-Tube section on the outside of her stomach by using silicone glue and another piece of tubing wrapped around the hole. It kind of a 'Home Depot' type fix but if works we will all be very happy!! :-)

Thanks again,

-Tim