Thursday, July 28th - Day 39 Update

Tori's first night in the CMU turned out to be a long one for not only her but for Maria as well... Tori basically was in pain and crying all night and all of her medications seemed to have zero effect on her. The multiple doses of Valium and Tranxene didn't touch her at all very early this morning either. Tori's stomach and overall mid section was tensed up and painful for her for most of the day. She was agitated and had more Myoclonic Jerks throughout the day as well. Tori was up for 18 hours straight before we had to use Hydromorphone which is a cousin of Morphine without the nauseating side effects. It finally did the trick and Tori slept for a good 5-6 hours this afternoon. When she woke up the discomfort in her mid section seemed diminished so it hopefully the antibiotics are finally taking effect.

Tori's late night feed yesterday caused her much of her discomfort so all feedings are stopped again until the E coli bacteria is gone.

Tori has been relatively calm throughout the night and we are about to give her some more Valium and Hydromorphone to ensure we all sleep tonight. Both Maria and I will be staying in Tori's room as well. Tori's Myoclonus still does have us a bit concerned and we are going to meet with the Therapist tomorrow morning to discuss additional Baclofen and a few other drugs I have researched on the internet today. We believe Tori would have been totally calm, comfortable, aware and awake tonight if she didn't have the Myoclonic Jerks...

Maria and I met Samuel and Kaylene's parents tonight in the hospital cafeteria. Samuel is a two year old near drowning patient who is in the NTU and Kaylene is a 6 year old near drowning patient who is still in the PICU. Both families have been in the hospital for 7-12 days and it was nice to share some of our experiences with each other. There are similarities and differences in each of our cases but we are all hoping and praying for the best.

Thanks again,

-Tim