Tuesday February 17th, 2008 through Sunday June 7th, 2009

Hello all,

Tori has been doing quite well since my last update several months ago. Outside of a trip to the PCMC late last week she has been very steady. We ended up having to take her because she was highly agitated and in much more pain than normal for a couple of days straight. We thought she may have a bowel blockage but we took various x-rays and ran numerous tests on her during our 5 hour stay in the emergency room and she checked out fine on everything. She starting feeling much better the very next day so maybe being in the hospital that long once again just helped her “get over it” :)

Tori’s therapies have continued though now that summer is here we will cut back on at least one of her ST sessions each week. Her PT sessions will also be cut down to one per week so we can reserve what her insurance covers and have at least one PT session per week throughout the year. With school out the house is also much more active having Whitney and Brendan home during the entire day. Grandpa and Grandma Schmanski have also been at the house for several months and are helping out immensely. Thank you so much and we love you guys!! :)

We have met with Tori’s doctors about the Ventral and Dorsal Rhizotomies and Tori is scheduled for surgery on June 29th. She will also be evaluated for her spinal fusion surgery on July 2nd and the surgery schedule for that will be determined afterward. It will be a busy summer for her and our family with 3-4 weeks of hospital recovery time for the combined surgeries. Our goal with them is to make her as comfortable and free from pain as we possibly can.

Other than all that there really isn’t much else to report on. We would like to send a BIG THANK YOU to Bonnie Miller for sending some of Lauren’s clothing and medical supplies for Tori to use. The clothes fit her wonderfully and will be well used by Tori!!

Thank you for checking in on Tori and our family and we appreciate all of the love and support provided.

The Schmanski Family
Tim, Maria, Tori, Whitney and Brendan