Sunday, November 26th - Day 523 Update

Hello,

Tori had a pretty good Sunday this week. During the morning she slept in along with the rest of us and then all of us went for a drive and a movie. Maria, Whitney, Brendan, Guy and I took Tori to see 'Happy Feet' in an IMAX theater in south SLC. The movie itself was awesome and Tori had to scan the massive size of the screen throughout but she did wonderfully!! In fact, I even witnessed the ever elusive 'Tori smile' during an early part of the movie. That alone made the adventure well worth it. By the time I motioned to Maria to look though she wasn't smiling any longer... Tori's smiles mean more to us now than ever. I placed headphones over Tori's ears during the movie to eliminate some of the excessive volume the movies always have. Again, Tori did great throughout the movie and took only a 10 minute nap or so towards the end. She was awake for the ending.

Brendan and I drove Tori home after the movie in the early evening while the rest of them went shopping. Tori went to sleep as soon as got her back into bed. Around 9:00pm Maria checked on her and she was just coming out of a seizure... Sometimes she becomes startled while sleeping and that sets her off. She was extremely 'loose' in her muscle tone afterward so she definitely had one. We are unsure on how to prevent them in the future... We have an appointment in early December to discuss Tori's muscle tone issues with the rehab physicians at the PCMC. Tori simply should be much 'looser' than she is with all of the baclofen she is receiving through her pump. We need to consider alternate medications to help on this front.

Grandpa and Grandma Schmanski returned to their winter location of Mesquite, Nevada on Saturday morning but Guy will be staying until Wednesday evening.

Thank you all as always,

-Tim