Thursday, October 19th - Day 486 Update

Good evening,

Wednesday night was another sleepless one for us as Tori wanted company and didn't want to sleep again... This pattern is pretty much exhausting Maria and I and we sure are hoping it will be stopping soon. By the end of the week we are both 'spent'... Tori didn't really have a nap at all today so we are crossing our fingers that tonight is the night. We shall see.

Tori had an ST session with Meredyth today and she did quite well as she usually does with Meredyth. They did numerous mouth exercises including mouth puckers and tongue maneuvering. Tori also had some suckers during this whole process. Meredyth then used her cards with mouth positions and the corresponding sound. Tori could pick the correct card after hearing the sound the vast majority of the time. She is picking by looking at the correct card.

Guy left for Boston again today and we'll miss him some more. It was very nice having him stay with us for a few days and we are looking forward to the next visit. Tomorrow we will head up to the PCMC in SLC to get Tori some much needed botox injections!! Maybe that will help relax her some more at night and then we can ease back on all of the zanaflex we have been having to use as of late. It is hard for Tori to be comfortable when she is clenching her fists, arms and shoulders constantly...

Thanks again everyone,

-Tim