Tuesday, September 5th - Day 444 Update

Good evening,

Today marked the first day in quite some time where Tori didn't require ANY extra medication other than one dose of ibuprofen this morning!! She was basically NOT agitated at all during the entire day!! No xanax, no zanaflex, no valium, nothing at all. Her myoclonic tremors and sensitivity to touch were also hardly noticeable during the day so Tori is definitely making progress.

The control of her thumb on her right hand and her pinky finger on her left hand are also back. Lately she has been so tense in her arms that relaxing her hands has been very troublesome for her. She can now relax them both and raise and lower them to meet your thumb with ease. Her wrists and most of her fingers are still very tight though...

Tori had some hamburger and cheese tonight but she didn't care for the olives at all. She spent some more time in her wheelchair mostly watching Tinkers chase Brendan around the house. She seems to enjoy that except when Brendan starts screaming during the chase :-)

Tori even slept quite well Monday night which is a very welcome change. She briefly woke up but went back to sleep soon after. Hopefully the great sleeping trend will be back with us all.

Thank you all for keeping Tori in your prayers,

-Tim